Gene Chips, Privacy & Nondiscrimination:
The Promise & Peril of Genetic Technology
October 10, 2001

Genetic technology represents the convergence between biotechnology and information technology. Gene chips, computer chips that analyze tens of thousands of genes at a time, enable rapid profiling of an individual’s genetic makeup. They open new avenues of medical research and offer the promise of individually tailored drugs and therapies. The ready availability of genetic information also could lead to abuses, such as discrimination in employment or insurance. The challenge for Congress is to discourage misuse without frustrating new technology development.

The briefing will address the issue of how to protect privacy and ensure nondiscrimination while deploying advanced genetic technology.

Senator Jay Rockefeller and Senator Bill Frist invite you to join them for a discussion of genetic technology, privacy and nondiscrimination.
Text Written Transcript of the session
Featured Speakers:
Susan Siegel, President of Affymetrix, Inc. — the leading purveyor of genetic testing technology, and patent holder and manufacturer of the GeneChip.
Hugh Rienhoff, Founder of DNA Sciences, Inc. — the innovative genetics discovery company that created DNA.com and the Gene Trust database.
Sharon Terry, Vice President of The Genetic Alliance — a leading international consumer advocacy coalition focused on the impact of genetic technology and genetic medicine.
Neil Holtzman, Professor of Epidemiology and Public Health at the Johns Hopkins Medical School — he is an expert on genetic technology and its implications for public policy.
Led by U.S. Senators Jay Rockefeller and Bill Frist, the Forum advocates no particular position or policy prescription. Our sole purpose is to inform. Our briefings are nonpartisan, balanced, and open to the public and the media.